"That rehabilitation might be making them 'less able to move' the harder they try"—What do children with cerebral palsy really need?
Hello. I'd like to write down some thoughts again today.
Today, I want to put into words something I've been feeling deep in my heart for a long time.
This is for all the therapists who work with children with cerebral palsy every day.
I am writing this not as a "criticism," but as a "proposal from someone who is in the same field."
"Rehabilitation that pushes too hard" might be taking away their movement
When you work with children with cerebral palsy, you often feel driven by the desire to "make them able to move," don't you?
I was the same. I wanted to help them move as much as possible. I wanted to increase the movements they could perform.
But when that desire becomes too strong,the goal can end up being "just to make them move".
In fact, I sometimes encounter rehabilitation that prioritizes "just moving" or "moving in a large range."
And while that may seem to draw out the child's "effort,"it can actually increase tension and hinder motor learning.
The risks of "making them try hard" when a child has high tension
Children try to move using the patterns they are best at.
For example, some children move by emphasizing symmetry, while others move by stiffening their whole body in a flexion pattern.
This isn't something they consciously choose; in most cases, they are doing it because "that's all they can do."
And what happens if you just repeat movements in that pattern?
Contrary to the therapist's intentions, it can end up reinforcing those "habits" or "tension."
Movement is inherently paired with "sensation."
But when tension increases, sensation becomes dulled.
As a result, they end up just "trying hard" without receiving feedback on their movement.
Trying hard → Tension increases → Sensation dulls → Movement becomes sloppy → Trying even harder...
It is not uncommon for them to fall into this vicious cycle without anyone realizing it.
"Moving is not always the right answer"
What I want to convey here is that
I want you to temporarily doubt the premise that "making them move equals correct.".
Of course, the act of moving itself is not bad.
But I want us to always consider,"Is this movement meaningful for that child?"
Moving them in a large range without any preparation means
"forcing them to do it when their sensations and posture are not prepared."
Does that really lead to improving the child's movement?
What we should do first
That is why I believe the first thing we should do is
"first, prepare their body so they can move."
Calming down muscle tension
Drawing out postural stability (anti-gravity extension activity)
Promoting core stability and building a foundation
Utilizing small muscles and postural maintenance muscles
Once these preparations are in place, the child will naturally "want to try moving."
And only then will the movement become meaningful as "learning."
Quality over quantity. Before moving, build a body that can move.
I believe that is our area of expertise.
This is how I explain it to parents as well
It can be difficult to know how to tell parents about adjusting the amount of exercise, can't it?
I feel the same way. But lately, I've been talking to them like this.
"Moving a lot is important. However, by building a 'body that is easy to move,' the effectiveness of that exercise will increase significantly."
"Let's get the body ready here today, and then have them move to their heart's content in their daily life."
It's not about stopping exercise, but doing what is necessary to 'make exercise more meaningful.'
By engaging with them from that stance, trust with the guardians also deepens.
Finally—this is also a question for myself
This isn't about wanting to criticize anyone.
Rather, it is something I myself have reflected on many times.
Making them try too hard and increasing their tension
Focusing too much on moving and breaking their posture
Exacerbating a child's 'difficulty in moving' with the therapist's own hands
But through those experiences,
I realized 'the importance of building a body that can move' after all.
And now, as someone who conveys that, I continue to share information.
If only one more person could share this same sentiment.
If I could be of help to a child struggling with rehabilitation somewhere, and their family.
Wishing for that, I stand in the rehabilitation room again today.
Thank you very much for reading this far.
