[For First-Time Visitors] A 20-Year Record of Home-Based Therapy with My Daughter with Severe Developmental Disabilities

Nice to meet you.
This note is a record of home-based therapy with my daughter, "Umeko," who has severe developmental disabilities.

I have organized over 20 years of practice by era and theme.
Please feel free to read from wherever you find most helpful.

[Self-Introduction]

Do you ever find yourself at a standstill regarding the reality of therapy?

I have been facing the challenges alongside my daughter, Umeko (now 28), who has severe developmental disabilities, for over 20 years.

While learning at the Tomoni Therapy Center, I have built up what can be done at home, one step at a time.

I am not a specialist.
I do not know any methods that yield immediate results.

Even so, over these 20 years, I have learned that
decisions made at home and the accumulation of efforts produce tangible changes.

In this note, I write based on the following three pillars:

・The "accumulation of decisions" made at home
・How to engage with support and systems
・Passing on skills with an eye toward life after the parents are gone

As much as possible, I am writing about the unvarnished reality.

Please feel free to read from wherever you need.

This note is for people like you

• Raising a child with severe or moderate developmental disabilities

• Tired of tantrums, refusals, and the inability to communicate

• Feeling anxious about whether "this way of interacting is correct"

• Feeling distressed when thinking about the future or "life after the parents are gone"

If even one of these applies to you,
this might be a note for you.

What I value in this note

There is no clear, single correct answer in therapy.
But I believe that there is meaning in the accumulation of efforts.

• Even if results don't appear immediately

• Even if you don't compare yourself to other families

• Even if it looks like a detour

What we have continued to do at home
has, over time, surely become a strength for our child.

In this note, I write mainly about
✔ Not a manual
✔ Not just sugar-coated words
✔ What actually happened at home

If you are a first-time visitor, please start here.

I have selected three articles I would like you to read first.

① The day I stood still as a parent

This is a record of the day I felt lost about whether I was doing the right thing
while facing my child.
For those who have also stood still like this.
▶https://note.com/ubazakurag/n/n509ab6c0b9a3?sub_rt=share_sb

② The philosophy I value in this note

I write about the core philosophy of this note regarding home-based therapy.
For those who want to know 'how to approach it' rather than just 'know-how'.
▶ https://note.com/ubazakurag/n/n9a664aa122b7

③ What we have actually done at home

This is a record of the therapy we have actually accumulated at home.
I write about what we have done in our daily lives, not anything special.
▶ https://note.com/ubazakurag/n/n2798c5fb07ab

About the overall structure of this note (Site Map Guide)

This article is the
'entrance' for those who have come to this note for the first time.

In this note, there are

• Philosophy of home-based therapy

• Practical records by age

• Articles by theme such as learning, behavior, daily life, and medical care
  and many other articles.

For those who want to know the overall structure
or want to find articles that suit their purpose,
I have prepared a page summarizing the list of articles and how to read them.

▶ Click here for the overall structure and article list of this note

I would be happy if you could use this as a map
whenever you need it.

In conclusion

This note is
not about "making things possible" at all,
but a record for "passing on the judgment of how to live."

Facing things quietly and for a long time.
I would be happy if you could follow me as a fellow traveler in that journey.

If this record stays with you, your support would be a great encouragement.