[Episode 1] 'The Miraculous Path of My Son' ~Days spent with a little life, holding trust instead of anxiety~
That day, my son was born into this world with a healthy cry of 2980g.
Right beside that joy, a trial I never imagined awaited us: a 'heart condition'.
Now that 20 years have passed, as a mother and as a woman, I would like to unravel the memories of those days.
This is a record of love and trust between a son who overcame great walls many times with his small body, and the family who supported him.
July 5, 2004.
The moment I heard my son's cry as he was born via scheduled cesarean section, the sense of relief from the bottom of my heart—'Oh, thank goodness...'—and the preciousness I felt when I held him in my arms for the first time, I still remember vividly.
But, before we could even soak in the joy of the birth or the lingering celebration, we were suddenly faced with a reality that made the world go dark before our eyes.
'After a little time had passed, we realized there might be an abnormality in his heart.'
When the doctor told me that, my mind went completely blank for a moment.
Fortunately, we were able to be transferred immediately to that famous children's hospital, and I looked forward with a feeling of desperation, yet trying hard to pull myself together, thinking, 'They have the best doctors there. If we can leave it to them, it will definitely be okay. I have no choice but to trust the doctors!'
The diagnosis the doctor gave us at the transfer hospital was something I had never heard before, something very difficult and complex.
'Double Outlet Right Ventricle, Single Ventricle Defect'
My little son's heart had a complex shape different from the norm, and it only had one chamber.
I received a careful explanation that as he grew, he would have to undergo truly major heart surgeries over and over again, such as the 'Glenn procedure' and the curative 'Fontan procedure'.
'What kind of illness is this, really?' 'Is there any way, even a little, to cure him easily...'
When I thought that, I couldn't sit still, and as a mother, I desperately searched on my mobile phone. I didn't want to just cry and watch; I wanted to properly understand my son's illness and gain the knowledge to fight head-on alongside him.
As if responding to that tense feeling of mine, my son was a truly strong child.
With that small, thin body, not long after he was born, he firmly endured his first difficult catheterization.
And then, August.
After the long first month of hospital life, the day finally came when we could safely be discharged to our home!
Until then, it was a repetition of going to the hospital every single day and saying goodbye...
'Finally, the life of going to the hospital from home is over!'
Together with his dad, we were so relieved from the bottom of our hearts and so happy, thinking, 'We're so glad, we can go home now.'
On the way home from the hospital, we first stopped by his dad's parents' house to show everyone his healthy face and say, 'We're back safely!' After that, we finished reporting to my parents' house, and finally, we reached our own home.
At home, his big sister N-chan had been waiting with bated breath.
At the arrival of the cute little brother she had been waiting for, N-chan was overjoyed and excited!
When I saw her innocent figure, I remember my chest warming up, thinking, 'Ah, finally, our lively and precious daily family life begins from here,' and a small but certain light of hope suddenly ignited.
(To be continued in Episode 2)
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