[Aplastic Anemia] 36. Third outpatient visit after discharge: No transfusion & reduced medication! About the SpO2 monitor and fingertip fashion.
I am documenting my case in this note, having been diagnosed with Designated Intractable Disease 60: Aplastic Anemia in March 2026.
This record is a compilation of my personal experiences and thoughts. Since I spent time wandering through social media looking for information after learning my diagnosis, I am writing this in the hope that my journey might provide peace of mind or serve as a reference for someone else.
Treatment methods vary from person to person, and while I may occasionally vent or show weakness, I am truly grateful to all the medical professionals. I hope this note becomes a small light that gently illuminates the hearts of those currently feeling anxious.
My first soft-serve ice cream of the year
One week after my previous outpatient visit on June 15th, June 22nd was my third outpatient consultation since being discharged. As usual, after finishing my blood tests, I bought lunch at the hospital's Doutor and went to the free space on the second floor.
Doutor's classic hot dog without ketchup 🌭
Minestrone 🥣
Iced coffee 🥤
And my first soft-serve ice cream of the year 🍦
I enjoyed it slowly and it was delicious 😋

Today, I consulted about my blood pressure, which has been on my mind. It is naturally low and usually never exceeds 110 for the systolic reading, but last week it was in the 140s several times when measured upon waking, so I talked about my concerns.
I was told, "For now, these numbers are not a cause for concern, but please continue recording them upon waking and before going to bed." I will keep doing it so I don't forget.
And the blood test results are
☑️White blood cells (average 3.3–8.6) ⇨ Previous 2.2 ⇨ 2.6
☑️Red blood cells (average 3.8–5.0) ⇨ Previous 2.22 ⇨ 2.81
☑️Hemoglobin (average 11.3–15.2) ⇨ Previous 7.5 ⇨ 9.1
☑️Platelets (average 150–350) ⇨ Previous 10 ⇨ 22
I was scheduled to have a platelet transfusion today as well, but based on Dr. B's judgment,
"Both your hemoglobin and platelet counts are rising. Since you had an allergic reaction to the transfusion last time, I think we can skip it with these numbers."
That was the decision.
Also, since the blood concentration of the medication is good, the immunosuppressant Cyclosporine, which I currently take as
2 pills after breakfast 💊💊
and 2 pills after dinner 💊💊,
will be reduced to 1 pill after dinner 💊 ☺️
I didn't need a transfusion, and the number of pills was reduced; there were two happy things today. I hope my blood cell counts continue to increase steadily ❣️
I want to return to enjoying fingertip fashion like I did before I got sick
During a transfusion, I wear an SpO2 monitor to measure blood oxygen levels. I thought I would have a transfusion today too, so I removed the nail polish only from the middle finger of my right hand before the consultation.

Of course, I didn't wear anything on my nails while hospitalized, and even after discharge, I only enjoy clear or very light pink nail polish so that it doesn't stand out if I have to remove it from just one finger for a transfusion.
Once my illness settles down and I no longer need transfusions, I want to enjoy red nail polish again ☺️
