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[Self-Introduction 2] To turn my daughter's "I did it!" into someone else's "I did it!"


▼Introduction

Hello. Or, nice to meet you. My name is Papao.

I am the father of a third-grade elementary school daughter.

My daughter has several disabilities.
She has two heart-related conditions and has also been diagnosed with epilepsy.

She also has ADHD, ASD, and a mild intellectual disability, so ingenuity is essential in our daily life.

I wrote a little about this in my very first post, so I would be happy if you could take a look at that as well.

I love my daughter to death.
Because of that, to be honest, I cannot help but worry about her future.

Will she be able to enjoy school life?
Will she be able to go out into society and work properly?
Will she be bullied? Will she fall into despair?
Will she be able to survive in the future after her parents are gone?

I think these are things every parent thinks about at least once, but when there is a disability, I feel that the "weight" of that worry increases significantly.

That feeling became stronger about two years ago.
It was around the time she was entering elementary school.

▼Before entering elementary school

We found out about her epilepsy when she was in the first year of kindergarten,
and she was diagnosed with ADHD and ASD in her second year.
Then, in her final year, we learned she also had a mild intellectual disability.

We worried many times as a couple whether to send her to a regular class, a special needs class, or a special needs school for elementary school.

Now, I think that going to a special needs class was the right answer, but at the time, I was truly worried that by going to a special needs class, we might be narrowing her future options or crushing her future.

However, what I realized while raising my child was that in life, "who you are with" and "what you do" are much more important than "where you are."

Living while connecting with someone's heart.
Being able to feel that "it is okay for me to be here."

I think that spending school life with similar peers, rather than forcing her to continue attending a regular class, creates happiness for both my daughter and the people around her.

▼But the reality is...

But in reality, as my daughter and those around her grow, the gap with those "surroundings" is growing larger and larger.

Behaviors that didn't stand out in kindergarten are increasingly being seen as "strange" in elementary school.

When your perspective on behavior changes, the way you interact with others changes too.
I gradually feel a temperature difference emerging.

In the midst of that, I started X on January 1st of this year, 2025.

At first, my goal was to gather information from people in similar circumstances, but as I saw many posts, I suddenly realized something.

"Is the world these children live in really this hopeless?"
"Are parents of children with special needs really this miserable?"

I thought.

Certainly, from the perspective of "normal" schools or "normal" employment, there are many situations where one cannot help but feel pessimistic about the future.

However, if they can find what they "can do" and realize "this is my strength," I started to think that even a life that isn't "normal" can be rich and enjoyable.
That is what I began to think.

Surely, there must be many parents who, like me, are worried about what will happen to their children in the future.

For those people, I hope my daughter's challenges and my daughter's "I did it!" can lead to someone else's "I did it!"

That is why I started sharing.

▼ I started posting various things

I share the process and background on X, such as going out with my daughter, turning the pictures she draws into characters, and making and registering handmade or DIY crafts for sale.

For example, we recently made these kinds of works together.

These are ballpoint pens I made with my daughter.

We are also making goods like T-shirts.

I am by no means trying to use my daughter's disability to gather sympathy or money.

But if the things my daughter makes can be even a little useful in someone's life, or if people in similar circumstances can think, "Maybe we should try that too."

If the places my daughter and I go and the things she enjoys can serve as a reference for parents and children who are worried about where to go or what to do,
and help them spend a fun time.

I think that would mean my daughter, while carrying her own difficulties in life, has been able to pass on "something" that enriches someone else's life to "someone."

And if my daughter can generate money through her work,
she won't have to spend her time in school or employment being afraid of society or those around her, and she will be able to live at her own pace.

I am taking on various challenges, thinking that if my daughter and "everyone who feels anxious" can do it, then that would be wonderful.

I would like to post about these works and challenges later on.

▼ The name "MT Land"

The account for this activity, "MT Land," is the name of the island my daughter gave her own island in Animal Crossing: New Horizons when she was in kindergarten: [Manaty Land].

So that my daughter can live freely and comfortably on her "own island."

And so that this path can also become a source of hope for someone else.

Using the name of my daughter's island, I will continue to write about my daily life, my work, and my daughter on note and X.

Thank you for reading until the end.
I would be very happy if you could support me by liking or following.

いいなと思ったら応援しよう!

ぱぱおさん|障害を持った娘と一緒に歩む日々。娘のできた!をみんなのできた!に|MTLand ここまで読んでくれてありがとうございます!チップは全額娘のために使わせていただきます♡

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