I went for a second opinion on breast cancer—it's taking time to gather information for surgical decision-making
Hello, this is Kumi.
I believe I was diagnosed on June 15th, but it is still taking time to gather information, and I haven't been able to make a decision about the surgery. Since quite a bit of time has passed, I'm feeling a bit anxious.
When I spoke with the hospital where I had the tests (let's call it Hospital S), the results of the immunohistochemistry were not yet available. So, I was planning to get a second opinion after those results came out.
However, when I inquired by email on June 30th, they just sent me the same documents I had received during the diagnosis consultation on July 3rd, so I assumed the results were still not ready.
But since a treatment plan couldn't be made without those results, I thought it was taking way too long for them to be ready. When I called again on the 9th, they finally sent them to me, and when I looked at the immunohistochemistry results, it turned out they had actually been ready since June 20th. That was when I realized that this hospital's email inquiry system probably doesn't function very well.
I took those results and went to get a second opinion at another hospital (let's call it Hospital B) today, the 11th.
This hospital is the most high-end in the region and is a hospital frequented by foreigners.
When I asked for the specialist's opinion there, the general assessment—for example, about having a total mastectomy—was mostly the same as at Hospital S, but there were two differences.
One is, sorry for being blunt, whether the nipple can be preserved.
Hospital B spoke to me under the premise of preservation.
I didn't remember Hospital S mentioning that, so I called them after the second opinion to ask, and they said they would remove everything and it couldn't be saved.
Hospital S has the images of the lesion, so they might be able to make a more accurate judgment than Hospital B, which might be why there is a discrepancy, but...
No, but, it's not like it's going to grow back, and if it can be saved, it's better to save it, right...
Is the nipple not that big of a deal? ...It is a big deal, isn't it?
So, I am currently confirming with Hospital B again whether it can really be preserved under my conditions.
The other thing is about the reconstructive surgery.
Hospital B explained that this would be done at the same time as the excision surgery, but Hospital S only explained that it was possible, with no discussion at all about the timing.
So I asked about that when I called, and it seems the excision department and the reconstruction department are separate, and they said if I wanted it, I would have to come to the hospital in person to consult with the person in charge of reconstruction.
They don't coordinate that?
I had the impression that excision and reconstruction were a set, so is it something that doesn't get connected unless the patient asks? What would have happened if I had proceeded without knowing anything?
Because of this, I'm starting to feel distrust toward Hospital S regarding how they handle things. Maybe this is separate from the quality of the surgery, but... what do you think?
I am currently asking Hospital B for a quote, but I suspect the costs at Hospital B will be considerably higher. Well, I have already obtained a Guarantee of Payment (GOP) from the insurance company for the treatment plan at Hospital S, so even if I end up transferring to Hospital B, I think it will likely be covered by insurance, but...
However, the surgery date is going to be pushed back...
It's just not getting decided...
By the way, I was told in advance that the second opinion would cost about 2,000–2,500 THB, but when I paid, it only cost 800 THB. It was cheaper than I expected.
Does that mean I didn't really ask anything of much substance?
But when you think about it, 800 THB is about 4,000 yen these days...
It seems the insurance company, Cigna, has its own second opinion mechanism, and since this was also suggested, I have requested it. This one is free.
A Japanese-speaking doctor will act as an intermediary to communicate with me (this person is a doctor, but not a breast cancer specialist, so they seem to be acting as a sort of specialized interpreter), and I will receive a response from a specialist. Since it's a remote service, it's just an opinion and they won't actually be performing the surgery.
Honestly, I wondered if it would be meaningless since I doubted I could apply the opinion to the actual treatment at the hospital. But since I'm a bit wavering right now, I feel like it was good to proceed with it as it could serve as a professional third-party opinion.
Man, it's just not getting decided...
Why was Hospital S so slow in giving me the immunohistochemistry results...
I've only been asked whether or not I will have a total mastectomy (including the nipple). Is that how it usually goes?
