I have created a place where you can talk about your anxieties regarding diabetes.
# The pain of having diabetes that your family doesn't understand
There are many moments when you feel it is painful to face diabetes.
When your blood sugar levels rise.
The fear of hypoglycemia.
Having to worry about your diet.
Being swayed by the numbers on your Libre.
But among all of that, the most painful thing is,
“My family doesn't understand me”
isn't it?
Diabetes is a disease that is difficult to understand just by looking at someone.
You can talk normally.
You can walk normally.
You can work normally.
So, from the perspective of those around you,
“Is it really that hard?”
is something they might think.
But inside, you are thinking about various things every day.
What to eat in the morning.
How much to eat at lunch.
Whether your blood sugar will rise too much at night.
How much it will rise after a meal.
Whether you will have hypoglycemia while sleeping.
How the Libre numbers are moving.
Each of those things affects your feelings.
I know your family doesn't mean any harm.
But,
“It's fine to eat a little bit, right?”
“Don't you think you're worrying too much?”
“You're taking your medicine, so it's fine, right?”
“Are you talking about blood sugar again?”
When they say things like that, there are times when you can't say anything back.
You feel like your serious worries are being brushed off.
You just want them to understand, but you are told you are worrying too much.
You talked to them because you wanted peace of mind, but instead, you feel lonely.
The pain of diabetes is not just about the numbers.
There is also the pain of not being understood.
I myself once collapsed with a blood sugar level of 808 and an HbA1c in the 15s, and I was admitted to the ICU.
That was when my life of facing blood sugar levels began.
While using the Libre, I reviewed my diet, organized my life, and have now brought my HbA1c back down to 5.7.
But just because the numbers have improved doesn't mean all the anxiety has disappeared.
I still worry about the movement of my blood sugar levels.
There is also the fear of hypoglycemia.
If it rises more than I expected after a meal, my feelings can be shaken.
That is precisely why the anxiety felt by those facing diabetes cannot be treated lightly.
The pain, especially when your family doesn't understand, stays in your heart.
Because they are family, you want them to understand.
Because they are the people closest to you, you want them to understand even a little.
But in reality, there are times when it doesn't get across well.
“I want to eat, but I'm holding back.”
“I'm actually anxious, but I'm pretending to be fine.”
“Every time I look at the numbers, my heart is shaken.”
“I'm restless because I'm afraid of hypoglycemia.”
Those feelings cannot be understood just by looking from the outside.
That is why the person themselves sometimes ends up carrying it all alone.
You should consult at the hospital.
Of course, that is important.
You must always consult your attending physician about medication, insulin dosage, treatment policy, and medical decisions.
You must never get that wrong.
But there are also feelings that you cannot fully express at the hospital.
Consultation time is limited.
Daily minor anxieties.
Things that hurt you in your interactions with family.
The loneliness you feel every time you eat.
The feelings that are shaken every time you look at the Libre.
It can be difficult to talk about all of those parts.
Therefore, apart from medical care,
I believe a “place where you can talk about your feelings”
is necessary.
I am not a doctor.
I am not a nurse or a registered dietitian.
I cannot provide medical guidance.
I cannot give instructions on medication, insulin dosage, or make decisions on treatment policy.
However, as someone who has experienced collapsing with a blood sugar of 808, being admitted to the ICU, and bringing my HbA1c back to 5.7 through Libre and dietary management, I can listen to you.
The pain of not being understood by family.
The feeling of anxiety every time you look at your blood sugar level.
The feeling of being afraid of hypoglycemia.
The feeling of being lonely because of your diet.
As someone who has experienced it, I will listen to those anxieties.
This time, on Coconala,
I have listed a message consultation service called
“I will be by your side for 30 days regarding your anxieties about diabetes and hypoglycemia.”
There is no phone consultation.
It is a service where we communicate via messages for 30 days.
You can write at your own timing.
It is okay if you cannot put it into words immediately.
When you feel anxious, you can organize your thoughts in writing.
Things you couldn't tell your family.
Things that were painful because you weren't understood.
Things you worried about regarding your diet.
Things that scared you when you saw the Libre numbers.
Things you were anxious about regarding hypoglycemia.
You can send those feelings in a message.
Diabetes is a daily accumulation.
But you don't have to carry those days alone.
Especially when you are not understood by your family, you need a place where you can talk to someone.
Just by putting your anxiety into words, you can sometimes organize your feelings a little.
Just by having someone listen, you can sometimes calm down a little.
Of course, I cannot provide treatment.
I cannot make medical judgments.
But as someone who has faced blood sugar levels in the same way, I can accept your anxiety.
Please do not carry the pain of having diabetes that your family doesn't understand all by yourself.
You are not worrying too much.
You are not weak either.
I think you are anxious precisely because you are facing your own body every day.
I have created a place where you can safely put that anxiety into words.
Please consult me only if you need to.
As someone who has experienced it, I will be by your side with your feelings.
▼ I have listed a 30-day message consultation on Coconala
I will be by your side for 30 days regarding your anxieties about diabetes and hypoglycemia
※ This service is not a medical practice or medical guidance.
※ Please be sure to consult your attending physician regarding medication, insulin dosage, and treatment policy.
※ There is no phone consultation. It is a consultation service where I listen to your anxieties and worries via message for 30 days.